Annie is the daughter of Chris and Megan Ward. Annie was born in April 2013 with a rare syndrome called Saethre-Chotzen. Additionally she has Craniosynososis, a condition that occurs when the sutures in the skull close prematurely causing problems with normal brain, skull growth and premature closure of soft spots. Because of this Annie has already undergone several surgeries and will continue to have surgeries until she is fully grown. With friends and family helping, the Ward family started the Cranio Cutie Foundation shortly after Annie was born with the purpose of sending Cranio Cutie Crates to the families with children undergoing surgeries with the Craniofacial Clinic at Children's Mercy Hospital in Kansas City. The Cranio Cutie Foundation was approved as a 501(c)(3) in June of 2017 and the story continues. |
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